Being a parent is a 24/7 'job'. You are always on the clock no matter the time of day or night. And for parents with a child with special needs, there does not seem to be enough time for rest.
Recently posted on NPR.com was a story about two parents caring for their son--who has cerebral palsy. The parents stated to NPR, "caring for their son is like caring for a newborn". Their schedules centered around their son and all their focus and attention is on him. The only problem, their son is not a baby. Their son is 16, and he cannot talk, walk and requires around the clock care. Both parents are in their 50's-- with no other children-- and know a time may come when they are not able to give their son the care he will need.
The parents are seeking support from their local church. They meet with the community members of their church to discuss all the ways they can get help for their son. Through the community they were able to get ramps built for their son's wheelchair, and receive help from the state In-Home Supportive Services program, which pays the mother $10 an hour to care for her son.
Many of our clients have come to us with the same worries as the family from the NPR news story. To help our clients we put together a resource guide full of information for short term and long term care for your child with special needs. In our resource guide we not only list places for short and long term care, but camps and schools as well. You do not have to do this alone, there is a lot of information out there and we have put it together in one place to make it easier on you. So pick up a copy of our resource guide: New and Improved Second Edition: Resource Guide for Parents of Special Needs Kids living in D.C., Maryland and Virginia. The resource guide can be ordered through our website, or you can give us a call at 202-393-3200 and request your FREE copy today.
To read this NPR story in full, click here.
If your family or someone you know is worried about taking care of a child with cerebral palsy, you're like many of our clients. Many people we have helped after investigating and determining that their child's cerebral palsy was caused by medical mistakes, first came to us to see if there was anything we could do to help.