I have a child with spastic cerebral palsy - how do I make decisions about his treatment?

I've heard the term CP Warrior and I love it because it shows the true spirit of both the child who has Cerebral Palsy and the parents that will do anything and go to any lengths for their child who has Cerebral Palsy.

I've also heard the questions that are constantly being asked when you have a child with cerebral palsy:

"What happens if I disagree with my neurologists recommendations?"

"Any ankle-foot orthotics that work?"

"Does your CP child have trouble sleeping?"

"Do you use Botox for your child?"

"What about myofascial pain release treatment?"

"My child had a PVL brain bleed....could this have been prevented?"

"Any thoughts on Cannnibis Oil?"

"Should I consider surgery for my child's mild spastic diplegia?"

"Will my child be in physical therapy for their whole life?"

The list of questions goes on and on.

When you have a child with Cerebral Palsy, you are constantly in decision-making mode. And you're constantly having to rely on the recommendations of doctors, specialists and therapists but what happens if you disagree with one? What happens if conventional wisdom just doesn't feel right for your child? What happens if you make the wrong decision? 

Thankfully, there is a huge network of people out there who are asking the same questions. Cerebral Palsy Awareness groups that can serve as a sounding board for your most difficult questions. But one question it's impossible to answer unless you have your child's medical records reviewed is:

"Could my child's Cerebral Palsy have been prevented?"

He Brought His "A" Game

Many times, Cerebral Palsy could have been prevented and trust me - the way the facts and the situation played out have absolutely no bearing on the value of your child. We know, and you know, that they are perfect just the way they are.

But, in the real world, children with Cerebral Palsy can incur millions of dollars worth of medical bills, equipment costs, and other types of support costs over a lifetime that most people don't have. And you're not going to be around forever - if your child will never be able to care for him or herself, who will take care of them when you're gone?

That's exactly why we do what we do. Hold hospitals and healthcare corporations accountable for the system failures and preventable mistakes that cause such serious harm.  In DC, Maryland and Virginia that takes a lot of work to prove.  When its about money, they fight you every step of the way.  

It's about justice, sure, but it's also about allocating resources to the people that need them to take care of their precious CP Warrior. Now, and in the future.

202-393-3320

Call us today to get answers to the questions you've been asking